Younger Onset Dementia

The term Younger Onset Dementia is usually used to describe any form of dementia diagnosed in people under the age of 65. Dementia has been diagnosed in people in their 50’s, 40’s and even in their 30’s.

Dementia in younger people is much less common than dementia occurring after the age of 65. For this reason it can be difficult and timely to diagnose, but the latest figures show that younger onset dementia affects approximately 16,000 Australians.

Consideration because when diagnosed they may be; 

When diagnosed they may be:

• In full time employment
• Actively raising a family
• Financially responsible for the family
• Physically strong and healthy

Encourage the person to plan for the future. This could include a number of  medico-legal issues such as driving and capacity.

Referral to a specialist service is required where the patient is young or atypical.

Mental Health symptoms that present for the first time in people aged in their fifties or younger are often an early sign of dementia. Non-recognition means that many of these people will have prolonged incorrect treatment without results.

The possibility of dementia should also be considered by GPs caring for people with a range of chronic diseases, including Multiple Sclerosis, HIV and drug and alcohol abuse.

A correct diagnosis is important.

A complete medical and psychological assessment may identify a treatable condition, or it may confirm the presence of dementia. See GP assessment and management for more information.

Ensure that family are referred to Dementia Australia for support groups and counselling services.

Dementia Australia (previously Alzheimer’s Australia) have a number of tip sheets and resources written specifically for people with younger onset dementia, their carer and family. For further resources, information and support, refer patients with YOD to the Younger Onset Dementia Key Worker.

Tip sheets

Additional resources